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NB: This page is excessively detailed and only covers the time in hospital. It also contains inaccuracies. Page replaced by overview page.
Projected Timeline
It’s unlikely reality will pan out like the “projected” timeline below, but it might give us some idea of what we are up against, and hopefully will help us to feel hope when times seem black if they are actually going roughly to plan.
Date | #Day | Procedure | drug administration | Why and What | Expected short term side effect | How will Saskia feel | Where will Saskia be |
Wed 21 Mar | -4 | Operation under general anaesthetic | Put in permanent "Hickman" line | Allows drugs / blood / etc. to be administered directly and easily through the line rather than having to give Saskia lots of different needle pricks | overnight stay, general anaesthetic side effects - nausea, tiredness, etc. | fine | |
Thu 22 Mar | -3 | go home for recuperation | fine | ||||
Fri 23 Mar | -2 | Transfusion | Blood | keeps Saskia's blood levels up | none | fine | |
Sat 24 Mar | -1 | fine | |||||
Sun 25 Mar | 0 | Move in to hospital | Antibiotics | fine | Isolation Room | ||
Mon 26 Mar | 1 | Chemotherapy | painkillers / antibiotics / anti nausea drugs / blood pressure control | kills off Saskia's own bone marrow | sickness, mouth ulcers, at risk from potential infections, tiredness, | not great - terrible | Isolation Room |
Tue 27 Mar | 2 | Chemotherapy | painkillers / antibiotics / anti nausea drugs / blood pressure control | kills off Saskia's own bone marrow | sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss | not great - terrible | Isolation Room |
Wed 28 Mar | 3 | Chemotherapy | painkillers / antibiotics / anti nausea drugs / blood pressure control | kills off Saskia's own bone marrow | sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss | not great - terrible | Isolation Room |
Thu 29 Mar | 4 | Chemotherapy | painkillers / antibiotics / anti nausea drugs / blood pressure control | kills off Saskia's own bone marrow | sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss | not great - terrible | Isolation Room |
Fri 30 Mar | 5 | Chemotherapy | painkillers / antibiotics / anti nausea drugs / blood pressure control | kills off Saskia's own bone marrow | sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss | not great - terrible | Isolation Room |
Sat 31 Mar | 6 | Chemotherapy | painkillers / antibiotics / anti nausea drugs / blood pressure control | kills off Saskia's own bone marrow | sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss | not great - terrible | Isolation Room |
Sun 01 Apr | 7 | Chemotherapy / cyclophosphamide / anti-haemorrhage drugs | painkillers / antibiotics / anti nausea drugs / blood pressure control | kills off Saskia's own bone marrow | sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss | not great - terrible | Isolation Room |
Mon 02 Apr | 8 | Chemotherapy / cyclophosphamide / anti-haemorrhage drugs | painkillers / antibiotics / anti nausea drugs / blood pressure control | kills off Saskia's own bone marrow | sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss | not great - terrible | Isolation Room |
Tue 03 Apr | 9 | Chemotherapy / cyclophosphamide / anti-haemorrhage drugs | painkillers / antibiotics / anti nausea drugs / blood pressure control | kills off Saskia's own bone marrow | sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss | not great - terrible | Isolation Room |
Wed 04 Apr | 10 | Chemotherapy / cyclophosphamide / anti-haemorrhage drugs | painkillers / antibiotics / anti nausea drugs / blood pressure control | kills off Saskia's own bone marrow | sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss | not great - terrible | Isolation Room |
Thu 05 Apr | 11 | Bone marrow transplant (Imogen in for General Anaesthetic) | Bone Marrow and cord Blood from Imogen | hopefully gives Saskia a healthy marrow - but takes as much as three to four weeks to "engraft" | not great | Isolation Room | |
Fri 06 Apr | 12 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | not great - hopefully getting better | Isolation Room | |
Sat 07 Apr | 13 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | not great - hopefully getting better- hair loss around this time | Isolation Room | |
Sun 08 Apr | 14 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | not great - hopefully getting better- hair loss around this time | Isolation Room | |
Mon 09 Apr | 15 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | not great - hopefully getting better- hair loss around this time | Isolation Room | |
Tue 10 Apr | 16 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | not great - hopefully getting better- hair loss around this time | Isolation Room | |
Wed 11 Apr | 17 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | not great - hopefully getting better- hair loss around this time | Isolation Room | |
Thu 12 Apr | 18 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | not great - hopefully getting better- hair loss around this time | Isolation Room | |
Fri 13 Apr | 19 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | not great - hopefully getting better- hair loss around this time | Isolation Room | |
Sat 14 Apr | 20 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | not great - hopefully getting better- hair loss around this time | Isolation Room | |
Sun 15 Apr | 21 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | not great - hopefully getting better- hair loss around this time | Isolation Room | |
Mon 16 Apr | 22 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | not great - hopefully getting better | Isolation Room | |
Tue 17 Apr | 23 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | not great - hopefully getting better | Isolation Room | |
Wed 18 Apr | 24 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | not great - hopefully getting better | Isolation Room | |
Thu 19 Apr | 25 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | not great - hopefully getting better | Isolation Room | |
Fri 20 Apr | 26 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | not great - hopefully getting better | Isolation Room | |
Sat 21 Apr | 27 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | hopefully getting better | Isolation Room | |
Sun 22 Apr | 28 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | hopefully getting better | Isolation Room | |
Mon 23 Apr | 29 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | hopefully getting better | Isolation Room | |
Tue 24 Apr | 30 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | hopefully getting better | Isolation Room | |
Wed 25 Apr | 31 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | hopefully getting better | Isolation Room | |
Thu 26 Apr | 32 | waiting / watching / Daily blood tests for infections | Antibiotics / antiviral drugs / cyclosporin | Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow | hopefully getting better | Isolation Room | |
Fri 27 Apr | 33 | We should have seen signs of engraftment by now..... | Antibiotics / antiviral drugs / cyclosporin | Infections still very risky watching to see what Saskia's own blood counts are like | hopefully getting better | Isolation Room | |
Sat 28 Apr | 34 | We should have seen signs of engraftment by now..... | Antibiotics / antiviral drugs / cyclosporin | Infections still very risky watching to see what Saskia's own blood counts are like | hopefully getting better | Isolation Room | |
Sun 29 Apr | 35 | We should have seen signs of engraftment by now..... | Antibiotics / antiviral drugs / cyclosporin | Infections still very risky watching to see what Saskia's own blood counts are like | hopefully getting better | Isolation Room | |
Mon 30 Apr | 36 | We should have seen signs of engraftment by now..... | Antibiotics / antiviral drugs / cyclosporin | Infections still very risky watching to see what Saskia's own blood counts are like | hopefully getting better | Isolation Room | |
Tue 01 May | 37 | We should have seen signs of engraftment by now..... | Antibiotics / antiviral drugs / cyclosporin | Infections still very risky watching to see what Saskia's own blood counts are like | hopefully getting better | Isolation Room | |
Wed 02 May | 38 | We should have seen signs of engraftment by now..... | Antibiotics / antiviral drugs / cyclosporin | Infections still very risky watching to see what Saskia's own blood counts are like | hopefully getting better | Isolation Room | |
Thu 03 May | 39 | We should have seen signs of engraftment by now..... | Antibiotics / antiviral drugs / cyclosporin | Infections still very risky watching to see what Saskia's own blood counts are like | hopefully getting better | Isolation Room | |
Fri 04 May | 40 | Watching that bone marrow takes without rejection | Antibiotics / antiviral drugs / cyclosporin | Infections still very risky watching to see what Saskia's own blood counts are like | hopefully getting better | Isolation Room | |
Sat 05 May | 41 | Watching that bone marrow takes without rejection | Antibiotics / antiviral drugs / cyclosporin | Infections still very risky watching to see what Saskia's own blood counts are like | hopefully getting better | Isolation Room | |
Sun 06 May | 42 | Watching that bone marrow takes without rejection | Antibiotics / antiviral drugs / cyclosporin | Infections still very risky watching to see what Saskia's own blood counts are like | hopefully getting better | Isolation Room | |
Mon 07 May | 43 | Watching that bone marrow takes without rejection | Antibiotics / antiviral drugs / cyclosporin | Infections still very risky watching to see what Saskia's own blood counts are like | hopefully getting better | Isolation Room | |
Tue 08 May | 44 | Watching that bone marrow takes without rejection | Antibiotics / antiviral drugs / cyclosporin | Infections still very risky watching to see what Saskia's own blood counts are like | hopefully getting better | Isolation Room | |
Wed 09 May | 45 | Watching that bone marrow takes without rejection | Antibiotics / antiviral drugs / cyclosporin | Infections still very risky watching to see what Saskia's own blood counts are like | hopefully getting better | Isolation Room | |
Thu 10 May | 46 | Watching that bone marrow takes without rejection | Antibiotics / antiviral drugs / cyclosporin | Infections still very risky watching to see what Saskia's own blood counts are like | hopefully getting better | Isolation Room | |
Fri 11 May | 47 | Watching that bone marrow takes without rejection | Antibiotics / antiviral drugs / cyclosporin | Infections still very risky watching to see what Saskia's own blood counts are like | hopefully getting better | Isolation Room | |
Sat 12 May | 48 | Watching that bone marrow takes without rejection | Antibiotics / antiviral drugs / cyclosporin | Infections still very risky watching to see what Saskia's own blood counts are like | hopefully getting better | Isolation Room | |
Sun 13 May | 49 | Watching that bone marrow takes without rejection | Antibiotics / antiviral drugs / cyclosporin | Infections still very risky watching to see what Saskia's own blood counts are like | hopefully getting better | Isolation Room | |
Mon 14 May | 50 | Watching that bone marrow takes without rejection | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | ||
Tue 15 May | 51 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Wed 16 May | 52 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Thu 17 May | 53 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Fri 18 May | 54 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Sat 19 May | 55 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Sun 20 May | 56 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Mon 21 May | 57 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Tue 22 May | 58 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Wed 23 May | 59 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Thu 24 May | 60 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Fri 25 May | 61 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Sat 26 May | 62 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Sun 27 May | 63 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Mon 28 May | 64 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Tue 29 May | 65 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Wed 30 May | 66 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Thu 31 May | 67 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Fri 01 Jun | 68 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Sat 02 Jun | 69 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Sun 03 Jun | 70 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Isolation Room | |||
Mon 04 Jun | 71 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Thinking about coming home | |||
Tue 05 Jun | 72 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Thinking about coming home | |||
Wed 06 Jun | 73 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Thinking about coming home | |||
Thu 07 Jun | 74 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Thinking about coming home | |||
Fri 08 Jun | 75 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Thinking about coming home | |||
Sat 09 Jun | 76 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Thinking about coming home | |||
Sun 10 Jun | 77 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Thinking about coming home | |||
Mon 11 Jun | 78 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Thinking about coming home | |||
Tue 12 Jun | 79 | Antibiotics / antiviral drugs / cyclosporin | hopefully getting better | Hopefully home |