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NB: This page is excessively detailed and only covers the time in hospital. It also contains inaccuracies. Page replaced by overview page.

 

 

 

 

 

Projected Timeline

 

It’s unlikely reality will pan out like the “projected” timeline below, but it might give us some idea of what we are up against, and hopefully will help us to feel hope when times seem black if they are actually going roughly to plan.

 

Date #Day  Procedure drug administration Why and What Expected short term side effect How will Saskia feel Where will Saskia be
Wed 21 Mar -4 Operation under general anaesthetic Put in permanent "Hickman" line Allows drugs / blood / etc. to be administered directly and easily through the line rather than having to give Saskia lots of different needle pricks overnight stay, general anaesthetic side effects - nausea, tiredness, etc. fine  
Thu 22 Mar -3 go home for recuperation       fine  
Fri 23 Mar -2 Transfusion Blood keeps Saskia's blood levels up none fine  
Sat 24 Mar -1         fine  
Sun 25 Mar 0 Move in to hospital Antibiotics     fine Isolation Room
Mon 26 Mar 1 Chemotherapy painkillers / antibiotics / anti nausea drugs / blood pressure control kills off Saskia's own bone marrow sickness, mouth ulcers, at risk from potential infections, tiredness,  not great - terrible Isolation Room
Tue 27 Mar 2 Chemotherapy painkillers / antibiotics / anti nausea drugs / blood pressure control kills off Saskia's own bone marrow sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss not great - terrible Isolation Room
Wed 28 Mar 3 Chemotherapy painkillers / antibiotics / anti nausea drugs / blood pressure control kills off Saskia's own bone marrow sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss not great - terrible Isolation Room
Thu 29 Mar 4 Chemotherapy painkillers / antibiotics / anti nausea drugs / blood pressure control kills off Saskia's own bone marrow sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss not great - terrible Isolation Room
Fri 30 Mar 5 Chemotherapy painkillers / antibiotics / anti nausea drugs / blood pressure control kills off Saskia's own bone marrow sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss not great - terrible Isolation Room
Sat 31 Mar 6 Chemotherapy painkillers / antibiotics / anti nausea drugs / blood pressure control kills off Saskia's own bone marrow sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss not great - terrible Isolation Room
Sun 01 Apr 7 Chemotherapy / cyclophosphamide / anti-haemorrhage drugs painkillers / antibiotics / anti nausea drugs / blood pressure control kills off Saskia's own bone marrow sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss not great - terrible Isolation Room
Mon 02 Apr 8 Chemotherapy / cyclophosphamide / anti-haemorrhage drugs painkillers / antibiotics / anti nausea drugs / blood pressure control kills off Saskia's own bone marrow sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss not great - terrible Isolation Room
Tue 03 Apr 9 Chemotherapy / cyclophosphamide / anti-haemorrhage drugs painkillers / antibiotics / anti nausea drugs / blood pressure control kills off Saskia's own bone marrow sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss not great - terrible Isolation Room
Wed 04 Apr 10 Chemotherapy / cyclophosphamide / anti-haemorrhage drugs painkillers / antibiotics / anti nausea drugs / blood pressure control kills off Saskia's own bone marrow sickness, mouth ulcers, at risk from potential infections, tiredness, total hair loss not great - terrible Isolation Room
Thu 05 Apr 11 Bone marrow transplant (Imogen in for General Anaesthetic) Bone Marrow and cord Blood from Imogen hopefully gives Saskia a healthy marrow - but takes as much as three to four weeks to "engraft"   not great Isolation Room
Fri 06 Apr 12 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   not great - hopefully getting better Isolation Room
Sat 07 Apr 13 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   not great - hopefully getting better- hair loss around this time Isolation Room
Sun 08 Apr 14 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   not great - hopefully getting better- hair loss around this time Isolation Room
Mon 09 Apr 15 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   not great - hopefully getting better- hair loss around this time Isolation Room
Tue 10 Apr 16 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   not great - hopefully getting better- hair loss around this time Isolation Room
Wed 11 Apr 17 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   not great - hopefully getting better- hair loss around this time Isolation Room
Thu 12 Apr 18 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   not great - hopefully getting better- hair loss around this time Isolation Room
Fri 13 Apr 19 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   not great - hopefully getting better- hair loss around this time Isolation Room
Sat 14 Apr 20 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   not great - hopefully getting better- hair loss around this time Isolation Room
Sun 15 Apr 21 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   not great - hopefully getting better- hair loss around this time Isolation Room
Mon 16 Apr 22 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   not great - hopefully getting better Isolation Room
Tue 17 Apr 23 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   not great - hopefully getting better Isolation Room
Wed 18 Apr 24 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   not great - hopefully getting better Isolation Room
Thu 19 Apr 25 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   not great - hopefully getting better Isolation Room
Fri 20 Apr 26 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   not great - hopefully getting better Isolation Room
Sat 21 Apr 27 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   hopefully getting better Isolation Room
Sun 22 Apr 28 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   hopefully getting better Isolation Room
Mon 23 Apr 29 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   hopefully getting better Isolation Room
Tue 24 Apr 30 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   hopefully getting better Isolation Room
Wed 25 Apr 31 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   hopefully getting better Isolation Room
Thu 26 Apr 32 waiting / watching / Daily blood tests for infections Antibiotics / antiviral drugs / cyclosporin Need to catch any infection very very early to keep Saskia well. Cyclosporin helps to prevent rejection of the new bone marrow   hopefully getting better Isolation Room
Fri 27 Apr 33 We should have seen signs of engraftment by now..... Antibiotics / antiviral drugs / cyclosporin Infections still very risky watching to see what Saskia's own blood counts are like   hopefully getting better Isolation Room
Sat 28 Apr 34 We should have seen signs of engraftment by now..... Antibiotics / antiviral drugs / cyclosporin Infections still very risky watching to see what Saskia's own blood counts are like   hopefully getting better Isolation Room
Sun 29 Apr 35 We should have seen signs of engraftment by now..... Antibiotics / antiviral drugs / cyclosporin Infections still very risky watching to see what Saskia's own blood counts are like   hopefully getting better Isolation Room
Mon 30 Apr 36 We should have seen signs of engraftment by now..... Antibiotics / antiviral drugs / cyclosporin Infections still very risky watching to see what Saskia's own blood counts are like   hopefully getting better Isolation Room
Tue 01 May 37 We should have seen signs of engraftment by now..... Antibiotics / antiviral drugs / cyclosporin Infections still very risky watching to see what Saskia's own blood counts are like   hopefully getting better Isolation Room
Wed 02 May 38 We should have seen signs of engraftment by now..... Antibiotics / antiviral drugs / cyclosporin Infections still very risky watching to see what Saskia's own blood counts are like   hopefully getting better Isolation Room
Thu 03 May 39 We should have seen signs of engraftment by now..... Antibiotics / antiviral drugs / cyclosporin Infections still very risky watching to see what Saskia's own blood counts are like   hopefully getting better Isolation Room
Fri 04 May 40 Watching that bone marrow takes without rejection  Antibiotics / antiviral drugs / cyclosporin Infections still very risky watching to see what Saskia's own blood counts are like   hopefully getting better Isolation Room
Sat 05 May 41 Watching that bone marrow takes without rejection  Antibiotics / antiviral drugs / cyclosporin Infections still very risky watching to see what Saskia's own blood counts are like   hopefully getting better Isolation Room
Sun 06 May 42 Watching that bone marrow takes without rejection  Antibiotics / antiviral drugs / cyclosporin Infections still very risky watching to see what Saskia's own blood counts are like   hopefully getting better Isolation Room
Mon 07 May 43 Watching that bone marrow takes without rejection  Antibiotics / antiviral drugs / cyclosporin Infections still very risky watching to see what Saskia's own blood counts are like   hopefully getting better Isolation Room
Tue 08 May 44 Watching that bone marrow takes without rejection  Antibiotics / antiviral drugs / cyclosporin Infections still very risky watching to see what Saskia's own blood counts are like   hopefully getting better Isolation Room
Wed 09 May 45 Watching that bone marrow takes without rejection  Antibiotics / antiviral drugs / cyclosporin Infections still very risky watching to see what Saskia's own blood counts are like   hopefully getting better Isolation Room
Thu 10 May 46 Watching that bone marrow takes without rejection  Antibiotics / antiviral drugs / cyclosporin Infections still very risky watching to see what Saskia's own blood counts are like   hopefully getting better Isolation Room
Fri 11 May 47 Watching that bone marrow takes without rejection  Antibiotics / antiviral drugs / cyclosporin Infections still very risky watching to see what Saskia's own blood counts are like   hopefully getting better Isolation Room
Sat 12 May 48 Watching that bone marrow takes without rejection  Antibiotics / antiviral drugs / cyclosporin Infections still very risky watching to see what Saskia's own blood counts are like   hopefully getting better Isolation Room
Sun 13 May 49 Watching that bone marrow takes without rejection  Antibiotics / antiviral drugs / cyclosporin Infections still very risky watching to see what Saskia's own blood counts are like   hopefully getting better Isolation Room
Mon 14 May 50 Watching that bone marrow takes without rejection  Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Tue 15 May 51   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Wed 16 May 52   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Thu 17 May 53   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Fri 18 May 54   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Sat 19 May 55   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Sun 20 May 56   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Mon 21 May 57   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Tue 22 May 58   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Wed 23 May 59   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Thu 24 May 60   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Fri 25 May 61   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Sat 26 May 62   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Sun 27 May 63   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Mon 28 May 64   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Tue 29 May 65   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Wed 30 May 66   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Thu 31 May 67   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Fri 01 Jun 68   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Sat 02 Jun 69   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Sun 03 Jun 70   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Isolation Room
Mon 04 Jun 71   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Thinking about  coming home
Tue 05 Jun 72   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Thinking about  coming home
Wed 06 Jun 73   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Thinking about  coming home
Thu 07 Jun 74   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Thinking about  coming home
Fri 08 Jun 75   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Thinking about  coming home
Sat 09 Jun 76   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Thinking about  coming home
Sun 10 Jun 77   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Thinking about  coming home
Mon 11 Jun 78   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Thinking about  coming home
Tue 12 Jun 79   Antibiotics / antiviral drugs / cyclosporin     hopefully getting better Hopefully home